FAQ

Can you die from RSD?
I can find no research evidence or even anecdotal opinion from reputable authors that would indicate that RSD - even in systemic presentation - would statistically lead to a high mortality rate. Even if this were so it would remain an extremely small proportion of the RSD population. I know of only one published fatality that could be attributed to RSD - that of a young American Teenager - and NONE in the UK. Research based evidence from highly reputable Medical teams indicates that mortality in RSD is negligible.

Equally the issues of seizures and memory loss, a common enough problem experienced regularly by countless millions of Epileptics. Seizures may be easily controlled today and a 6 minute fit is by no means long - I have seen individuals fit for hours - but with ITU intervention recover to a normal state of health. As for episodes of high or low blood pressure (Hypo or Hypertension) these are easily enough to monitor and control although I do not doubt that they are very frightening at the time. Countless illness lead to episodes such as this and blood pressure control is subject to vast international research.

Dave Barton - Group Organiser of SKIP (Supporting Kids In Pain) http://shsskip.swan.ac.uk

RSD is not a killer but, for many people, it does bring on a problem that can be life threatening… the problem of loneliness. The number of suicides among RSD sufferers is not statistically large, but suicide is probably at the root of rumours that RSD can kill. Of course, loneliness can be caused by many of life's problems, and the best treatment is friendship and caring support. If you feel weighed down by constant pain and feel that "nobody understands how I feel" you would do well to join a Support Group of find other ways of sharing your burden with people who will support and affirm you as a person. Check out the "Help Groups" pages on RSD Alert or write to one of the RSD Alert Team to share your concerns. But don't worry that the RSD itself might kill you… it won't.
Derrick Phillips - Editor of RSD Alert

www.rsdalert.co.uk
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