FAQ

I have recently been diagnosed with RSD - so what do I do now?
Having a recent diagnosis is good news and bad news. The bad is that you have it at all - and you are understandably scared. The good news is that you are still in the period when treatment can have the greatest effect. The pain is awful... I know because I had it myself. However, you will notice that I used the past tense. My treatment (which is outlined in detail on RSD Alert) was encouragingly successful. My physiotherapist told me that the more flexibility I achieved the less pain I would have and, in my case, she was proved right.

On the other hand, I must say that many people are not as lucky as I was. Pain relief is not guaranteed. Even in my case the RSD has not gone away completely, as I still feel lingering sensations that warn me to keep the hand and wrist exercised. I am also aware that the RSD is likely to return with a vengeance if I break another limb. But I am not in pain and am able to live a full and active life.

Most people agree that, even if the pain doesn't go away, the important thing is to get your life back. Aim to win back the maximum mobility and to win back the use of your arm, leg, ankle or wrist - or wherever the pain has taken hold. It is possible to live with pain and it is better to have a painful limb that works than a painful limb that doesn't work. Focus on getting the affected limb moving (yes, I know it hurts) and you may be rewarded with gradually diminished pain levels. Take such medications as the doctors recommend (you can check what the drugs do by looking at "Drugs on RSD Alert") and do the recommended exercises. I am not talking about a "no pain no gain" philosophy - do what you can to alleviate your pain, but don't let it dictate what you do with the rest of your life.

These are not comforting words, but I hope the thoughts will help.
Derrick Phillips - Editor of RSD Alert

 

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