RSD Alert
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RSD Alert is a voluntary
organisation publishing RSD/CRPS
information, mostly provided by
our readers.
Every approved medical drug works for some people but not for others.
Don't be alarmed by what you read. If in doubt consult your medical
advisor.
To make personal contact with one of the RSD Alert Team click CONTACT.
To pass on information for publication in "Drugs on RSD Alert"
click Submit Info.
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Drugs |
Drugs on RSD Alert
(notes and comments from correspondents) |
Alferon N |
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Description |
A proprietary form of Alpha Interferon. Interferon modifies the actions of the immune system to increase the recognition and killing of infected cells. It inhibits the synthesis of viral messengers. It provokes the release of the body's defence systems to combat other conditions. Additionally, it slows the growth of target cells and inhibits the expression of certain oncogenes. Injectable. Also marketed as IntronA |
Side effects(Don't be unduly alarmed. All drugs cause side effects for some patients) |
Side effects may include flu-like symptoms, anorexia, fatigue, low-grade fever, and weight loss. Nausea is common. Side effects get worse with higher doses. Instances of heart problems have been reported with an inferred connection with this drug. |
Warnings(These are standard cautions but may not apply in your case) |
Currently licensed only for treatment of patients 18 years of age or older. |
Comments |
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| I
have battled RSD for 12 years. It started with a ruptured achilles
tendon and spread to all four limbs. You name it, I tried it. I
was down to a choice of a morphine implant or brain implant stimulator
and I didn't care for either choice. I entered a drug study program
for fibermyalgia because I didn't have anything to lose. I was almost
completely bedridden, could barely walk on a good day and was experiencing
tremor attacks with more and more frequency throughout the day.
It was a living hell of pain and I spent most of my days curled
up on the floor in a ball, crying. The drug they tested was Alpha-Interferon.
By week two of the study I could sense a drastic change in my pain
level (6 as opposed to 9 or 10) and within the next six months the
tremors stopped almost completely. I started back to work 2-3 hrs
a day (after not being able to work for 10 years) and slowly over
the following 12 months I was gradually able to work up to an 8
hour day. I take the Alpha Interferon three times a day and double
up on a really bad day. I'm also taking Vioxx. My doctor is not
sure why the Interferon is working, but who cares! I work at a hospital
and have spoken with our Spinal Cord Clinical Pharm D. and she says
they are having great results with Interferon on some of their MS
patients. I just know I got my life back when all hope was gone.
Von, USA
As a patient on Intron A for nine years at a daily dose of 9mill
iu I suffered heart failure and Kidney failure due to the use
of interferon. I do not see this mentioned in your side effects.
I know this is very rare but it happened to me at the age of 34.
My doctors at the Queen Elizabeth Hospital, Birmingham now put
my near death as IntronA induced. Please make people aware of
this risk as I was not monitored for my heart at all, even though
I complained of palpitations and poor circulation for years beforehand.
Sonia - Birmingham, England |
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