RSD Alert

www.rsdalert.co.uk

Warning and encouraging

RSD Alert HOME page
write to 1 of the RSD Alert Team

This site exists to spread awareness of Reflex Sympathetic Dystrophy and to encourage those who already have RSD.

Pass the word on.

RSD related websites and Support Groups

RSD patients and carers now have many places to find help as concerned people have created support groups, campaigns and websites to raise awareness and provide help. Here is a selection of websites where you can find information, advice and contact with people who understand. If you know of sites we ought to be listing here, please click the Contact button and write to one of the RSD Alert team.
Click on the Site Names to follow the links -

Fighting RSD

A relatively new UK based website and support group at www.fightingrsd.co.uk with some helpful pictures and articles.

RSD-CRPS.co.uk

A registered RSD/CRPS charity and mutual support group for sharing support, ideas and contact. UNFORTUNATELY THIS GROUP IS SET TO CLOSE IN EARLY 2008.

SKIP Children's Support Group
(Support for Kids in Pain) plus Chat and Forum

Focusing on UK children with RSD, this site is run by a family whose son has RSD. Includes a chatroom for children with chronic pain.

American RSD Hope Group

This long established USA Group holds a mine of information, plus 'cyber-pal links. Conference held annually in Maine.

RSD World News
and
Quickbase

Both run by Anthony Tobin -
RSD World News gives daily updates on sites, medicines,procedures and papers on RSD/CRPS.
Quickbase is a vast resource of links to RSD websites and on-line articles, stories and news.

RSD-CRPS New Zealand

A new group, linked with RSD Alert and the RSD UK Alliance, aiming to support RSD patients and carers in New Zealand.

RSD Arena

A UK group that seeks to encourage local meetings for RSD patients and carers. They also offer help via their website.

Helping families who care for children with any disability or special need.

The Princess Royal
Trust for Carers

Formerly known as Caregivers' Corner. A UK based website where carers can meet and share.

RSD Association of America

Includes a large document on RSD Clinical Guidelines - very helpful. Versions of the site also available in Spanish or French.

Sydney based RSD information site

A home grown Support site for our Aussie friends... Take a look.

RSD Talkcity chatroom
plus related website
RSD Retreat

USA website and chatroom for RSD sufferers and carers. Click the top link for chatroom directions.

Patients' Association

Click link to read about this Association helping patients who have problems with the British National Health system.

Pain Support

This UK based site is designed for anyone who has pain of any kind. Pain Support promotes a multi-disciplinary approach, where conventional medicine and complementary therapies work side by side.

RSD Parents

USA based Support Group for parents of children with RSD. RSDParents was born out of a need for a place for parents of children with RSD to reach out to other parents in the same situation for support, information, and friendship. They welcome parents or guardians of these children, no matter how young or old the child. They want you to be able to speak freely about the issues you are dealing with. RSDParents don't want you to feel alone any longer.

Crossroads

Caring for carers (providing practical support for carers in the home)

Dr Hooshmand

Medical information about RSD

Dr. Rhodes

Medical information about RSD. Based in Corpus Christi, Texas. Deals with Workers Comp patients and works with most USA Insurance Companies.

Canadian RSD Network

Canadian based. Runs an annual conference.

RSD Harbor

A USA based Support Group run by Catherine Rice

RSD Retreat

USA site run by Amanda (see her story on Storyboard) supported by other RSD sufferers.

There is hope

A US based site run by Carol Rains, who got RSD in 1999

RSD Aware

Includes a search facility for RSD/Chronic Pain links.

Cope with RSD

A personal website with links to many sources of RSD information.

Faces of RSD

Stories about RSD, plus pictures.

find a specialist (UK)

Designed for General Practitioners, this site identifies UK based medical specialists for most conditons.

Australian Health Site

Search for specialists or GP etc in any area of Australia. Create a personal health record online and keep articles of interest, a record of your medication, your doctor's contact details and more.

Massachusetts General Hospital (Chat Group)

Webforum, base in Massachusetts, to discuss and comment on Reflex Sympathetic Dystrophy

South Carolina RSD Support Group

A locally based, but internationally accessible, Suport Group run by Louise Plaster, who is herself an RSD sufferer. Sunshine begins at the Home Page!

Chronic Pain Support Group

Not specifically RSD but a lot of the people who chat there have the condition. Normally starts at 9pm EST.

RSD Pregnancy Pals

A support group focused on the needs of women who face the challenge of RSD and pregrancy.

UK Self Help

Links to self-help groups and resources covering a variety of conditions. They also produce a PRINTED DIRECTORY

RSD-CRPS (Chat Group) USA

We are here for you to discuss treatments, medications and VENT with others who suffer from this painful disease.

MN RSDS/CRPS Coalition

A support Group based in Minnesota, USA aiming to provide help for RSD/CRPS sufferes, especially in the Minnesota area.

Tell us about other helpful links we could add to this page
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