RSD Alert www.rsdalert.co.uk
|
||||||||||||||
If you have a story to tell,
send it in
Custom Search
|
Full body RSD - but still fighting |
|||||
|
Hi My Name is Howard Runyon and I have full body RSD. I was hurt
on my job 4 years ago. I fell down a hill and broke my ankle and
leg bone. From there I had plates and screws put in and then the
RSD started. It has not stopped spreading and has spread to my whole
body including internally. I had a very bad heart attack where a
blood clot had developed in my foot and leg and broke lose and hit
my lungs and heart. My bladder is dead; I have it in my bowels,
chest wall, legs and both arms and mouth. The first doctor that
I saw did not believe in RSD and when I did get to see a good doctor
It was too late It had started spreading fast and the first three
months were hell for me I had over 6 spinal operations and over
50 nerve blocks and none of the operations and blocks help. I have
a SCS and a pain pump implant that helps some but I am still in
pain; I am also crippled from the waist down. I have super sensitivity
from the knee down and I cannot have anyone or any thing touch my
legs. I have also bleeding ulcers on both my legs that are very
painful and my legs get infected all the time - my immune system
is no good anymore, so I can't fight off anything. My wife is my
caregiver and she is wonderful to me. She does all the research
on RSD and she is even telling the doctors what she has learned
and she spreads the word very well. We were living in North Carolina
USA and the whether up there was getting to bad for me so my doctor
recommended us to move to warmer climate, which we are glad we did.
The warm climate has helped a lot. I am still in pain but I was
sent to see two good doctors and they are doing all they can for
me to let me become more pain free. The most important thing is
that I was lucky to have a doctor with a wound care center and he
has Hyperbaric Oxygen Chambers and he put me in for 60 visits; now
my legs are completely healed from the bleeding ulcer. My legs are
still in pain most of the time but at least I do not have the bleeding
ulcers to deal with. I still have to be careful not to bump my legs
or have someone mishandle me or they will start breaking out again,
but I keep them well protected. Also I will be starting massage
therapy on my arms; I have been having bad flare ups in my left
arm and the doctors are doing all that can be done. If you like
some more info on my treatments of the HBO I will be glad to help
in anyway, I read the story of the lady that was in a wheel chair
like me and after the treatments got up and walk again, Well the
doctor are saying that I most likely will not be able to walk again
my bones and muscles have wasted away already on my legs and in
my hips, so I have 3 wheel chairs that I use for different things
and activities, Please if I can help in any way please let me know.
My wife and I live in Tampa Florida USA and she is the one to email
and ask the questions to. She does all the computer work… I
tell her how I am doing from one day to the next and she writes
and notes all. It has been a long 4 years but we are not giving
up and we are not giving in to the Monster of RSD.
© Howard Runyon - Tampa, Florida - 2004
|
|||||
|
www.rsdalert.co.uk
for correspondence click CONTACT |
|||||
