An Australian battles CRPS with every trick
in the book - including mirrors
My story began with a triple compound colles right wrist fracture
in 1998. I thought that I would just be in plaster a while, have
physio and then life would go on as before. I was not prepared
for the unrelenting pain that began then and continued for ten
years.
I was told the pain was due to the severity of the break and
I would be left with a stiff wrist and limited movement. It was
two years after the accident that I was diagnosed with Complex
Regional Pain Syndrome and by this time the pain and symptoms
had spread. A year later I went through a treatment protocol,
much the same as others. Unfortunately by this time my body was
in such a state of alarm that I reacted badly to the medications
and was informed nothing more could be done. I was devastated.
On the one hand I was told I must get pain relief in order to
do physical therapy and on the other that I was never to take
even over the counter pain relief.
My wonderful pain psychiatrist threw me a lifeline. He told me
about the latest research into things that can help eg Capsaicin
cream made from chilis. He suggested I eat salmon to increase
vitamin E to help with inflammation. He talked about the benefits
of beetroot etc. Then he suggested I go home and look things up
on the internet. He gave me some control.
Finally after much searching I found some things that helped
me so in August 2006 I created a blog about what works for me.
This was the way forward for me finally.
The most important discovery I made was mirror visual imagery,
or mirror therapy. When I first read the research I was unsure
how it could apply to me as I now had a whole body problem. I
waited until I had a more severe one sided flare up and began
from there. It was no miracle instant cure but the more I did
the mirror work the better response I got. Finally after many
weeks I was able to calm the flare up. This was a first as up
till them I had no means of calming pain.
Over the past year I treated one flare up after another, each
one following immediately on from the last. However last December,
2006, for the first time I had a break between flare ups. This
was the first break from severe pain in many years. It lasted
two days. I was over the moon. Throughout this year Ive
continued to treat flare ups and although sometimes I would still
swing from one flare up to the next gradually the breaks became
greater. Recently I had over three weeks break in a stretch. I
slept like a baby for the first time in ten years. Right now Im
dealing with a lower right quadrant problem. This is coming from
the lower back on the right side. Mirror therapy for backs isnt
easy but it is possible and it does work.
Now in November 2007 Im feeling optimistic. I have a list
of things to refer to when things get worse and I know that these
do help. I dont believe mirror therapy alone is the answer.
Physical therapy is the most important thing. Each time you move
you give your brain feedback and the message that you can do this.
Mirror therapy reinforces the its ok message
to the brain. Laser acupuncture relaxes muscle spasm and again
gives a clam message. Eating smart by increasing foods high in
antioxidants helps deal with free radical damage from the stress
caused by pain etc. Capsaicin cream helps with burning pain. Controlled
breathing activates the parasympathetic nervous system again giving
an its ok message. Pressure of water does the
same so a bath or water therapy is great. There are many more
things on my list. If you google crps/rsd a better life
you can find out more.
I cant believe that just over twelve months ago I was such
a mess and now I can walk to the beach. The new understanding
of the part the brain plays in pain is changing the way we are
able to manage pain. For this I am very grateful.