We don't
have anything against doctors, but this story is a salutory
lesson about the problems RSD patients experiece. RSD is not
rare and can be treated effectively - but delayed diagnosis
can seriously affect the outcome.
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Doubts
about doctors
(continued - page 2)
Almost from the day I left hospital I had a burning pain. I was
prescribed anti depressants both for the pain and for the trauma.
The problem then was they gave me a migraine and a terribly hangover
feeling. They tried other options, but with no success.
I attended rehab for the first few months out of hospital. I
was assessed as not being fully recovered and it would be a couple
of years before I was recovered so until this happened I was unable
to be retrained to go back into the workforce. I never got the
retraining due to bungling. I tried going back to work but with
no income to retrain and no real experience in the jobs I was
able to do. I had no luck in finding work. I was forced to do
manual work as I had before the accident, but that made my condition
worse. I went to doctor after doctor trying to find out what was
wrong with me and was given all the excuses under the sun. I tried
to keep working. I was not eligible for a pension, as they could
not work out what was wrong with me.
After being in a motor vehicle accident I was entitled to compensation.
I got some, but this was before I was diagnosed with the RSD and
with the full expectation that I was able to go back to work.
I kept going back to work but kept getting sick and having to
leave my job. The doctors couldn't tell me what was wrong I just
kept going around and around in circles. I tried to get help from
the compensation people but no one wanted to know.
Finally a doctor saw me while I was in the middle of an attack
(or flair as they are called) and I was diagnosed with RSD. This
was 7 years later and too late for intervention. My face, neck,
both arms and hands, my lower back and chest area where the tubes
were put in are the main areas affected. I have osteoarthritis
in my whole spine. The RSD causes muscle spasm affecting my total
back area. The spasm in my lower back causes pains in my leg and
feet, so severe some days it hurts to stand up. As a result of
the bombardment on my body I have developed intolerance to a lot
of chemicals. I suffer headaches, nausea, sinus and an asthma
type reaction.
I have sensory issues with the burns scars and also with the
damage done to the nerves with the burns add the RSD to this and
what a mix. Sometimes it hurts sometimes it doesn't, sometimes
you can't feel it at all. I was referred to a pain clinic and
due to the fact that we live in Outback Queensland, the clinic
was 2,000 klms away. I had success with the clinic and benefited
from my trip there. The program that I was placed on was a big
step forward for me. The information that I received on my condition
was a great help. The exercises and medication program, which
for me was Mexilitene - Mersyndol Forte & Panamax helped me
maintain a relatively pain free or stable state for a few years.
I was able to manage my life and get some semblance of order other
than feeling like I was spiraling out of control. The clinic worked
a program where due to where I lived they would work with my local
GP in medication and if my condition did deteriorate I then had
to go back to the clinic.
I managed to go back to work and was quite successful with it
this time. I enjoyed it. Then the pain came back. We have all
heard about the problems getting doctors. in the bush. This is
where my life fell apart again! The doctor who diagnosed my condition
had moved on but he left behind my medical history, so I should
have been right. When my condition deteriorated I went to the
new doctor and asked for help. I got a new script, Indocid. When
this did not help I went back to the doctor. I asked to be referred
to the pain clinic but he said it was not necessary and prescribed
me more medication. This went on and on.
I live 120 klms from the next nearest doctor. I tried going to
another doctor. I tried visiting the emergency department at the
Hospital. I could not eat. I was in so much pain. I was putting
on so much weight it wasn't funny. I got depressed. My mood swings
were terrible. My blood pressure started to fluctuate and the
pain got worse. I had a catscan and went to an Orthopaedic Surgeon.
I was 34 years of age. I was told that I had Osteoarthritis in
my spine and this was due to old age and to learn to live with
it, as there was nothing that could be done. I was sent to a Physio.
At the third visit the treatment started and as soon as I was
touched I went through the roof. The treatment planned for the
day was changed. The next day I went to get out of bed and the
pain I could not move. It hurt to stand up. The pain was throughout
my body it was excruciating
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