We don't
have anything against doctors, but this story is a salutory
lesson about the problems RSD patients experiece. RSD is not
rare and can be treated effectively - but delayed diagnosis
can seriously affect the outcome.
If you have a story to tell,
send it in
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Doubts
about doctors
(continued - page 3)
I went to the doctor. He told me that this was a normal result of
Physio, gave me an injection and told me to go home and go to bed.
When the injection wore off I went back to the doctor, as the pain
was just as bad. He said I could not have another one of those injections
as you can only have one a fortnight, so I was sent home. I lived
like this for nearly 12 months (my husband was working away at this
time).
Finally I got fed up big time! I went to the naturopath. I thought
"nothing to lose!". I was assessed and given a program
of Vitamins and Minerals. I was told it would take up to a month
before I got any relief. One week later I was bouncing all over
the place. I was totally amazed and completely converted. I was
not totally pain free but the relief was unbelievable. Outside
of the injections I had not had such pain relief for a long time.
On my next visit I was advised to trial Bowen Therapy. I was
game after the previous result. I received my first treatment
and I must say I was very skeptical. The next day I was amazed.
The relief, I couldn't believe it this treatment worked! I went
back. I have persisted with the Vitamins and Minerals. I don't
have Bowen Therapy often as it is hard to access here but when
I can I am first in line. I now am able to do Yoga and Tai Chi.
It has now been 4 years since I switched over to alternate therapy.
I still have pain and I still get flairs. I have modified my diet
and have removed as many chemicals as possible. I try to eat as
many fruit and vegetables as possible. I do lapse and have junk
food, but not often. I have found that I have trouble with soy
products, MSG, margarine and low fat food (basically anything
that is highly processed and most of the additives).
The weather affects the RSD, so does any bug I may pick up, I
do occasionally work but cannot do so full time. About 12 - 15
hrs a week is my limit. I have to watch what I do physically and
make sure I don't overload the old body. I take Vitamin B - Zinc
& Magnesium, Glucosamine tablets everyday. I take garlic tablets
during the summer months and Echinacea during the winter months.
When I have a rise in pain I use Panamax. If it gets really bad
I use Mersyndol Forte and occasionally Vioxx or Tramadol.
I am doing quite well.
And every day I miss my kids but every day I try to dwell on the
things I am thankful for. Every day I thank my husband for standing
with me through this hell. If he were not still with me I would
not be here.
Ray's daughter gave birth to a little girl in November 2003.
How pleased we are - but often I resent it. She is aware of my
problems Fancy having to temper the joy of your first child
and new family with the thought that your stepmother sometimes
has trouble with what is happening.
That is where we are to today. We have bought a block of land
to bring me closer to available treatment and also to a milder
climate. I hope that this story can be a help to someone.
Take Care and all the best for everyone in the future.