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Natallie

I've been diagnosed with RSD. The majority of the information I have found out from internet sites. It is because I slipped on a wet floor at work through my employers' negligence that I ended up with this freaky thing that goes on constantly in my body.

It took a year and a half to be diagnosed after the accident. I've just turned 21 and I've got to deal with the fact that if I go more than a couple of streets away, I need my wheelchair, I'll probably not manage to walk down the aisle on my wedding day, I'll never go clubbing again and I won't ever be able to play football with my nieces and nephews again. I take all sorts of different medications. I've tried all sorts of therapies.

It took over a year to straighten my knee after the accident and I'd started physio a week after the accident (my Dad had to learn to walk again 20 years previously and he had me doing his old excercises which in turn were those advised by the physiotherapist). Some days are good and I can walk from one room to the next using just one crutch, or go shopping for most of the day, but I always end up paying the price, be it later that day or later that week. Other days it's hard to get out of bed it hurts so much. I hate the fact that I'm so young and I need help getting a shower because it hurts so much. Some times my leg goes patchy, or has a weird rash. It swells most days, up to twice it's size. The majority of days I will need a nap at least once for 10 mins or up to 2 hours; I can seldom go without at least one nap as I am so drowsy and I hurt so much. The pain doesn't help with sleep so the only sleep I get is either drug induced or I wake up roughly every half hour.

Not even my periods are normal. I've not had a normal cycle, not even with oral contraceptives, since the accident. It's hard not to feel bitter. No one seems to know what the score is, no one has the answers to my questions. I don't want it, but it's something I have to deal with.

Jackie Snyder

Hello My name is Jackie Snyder. Gee I don't know whe

re to start. I came across your web site looking for some type of help. I also have RSD 1998 from an injury at work or from the shoulder surgeries. I'm not sure. I am not able to work because of the severe pain and the medications. I have been fighting a Workman's Comp. Insurance Co. and Social Security Disability but they think I am exaggerating my pain. I have been seeing a neurologist Dr. Smith who can prove it thru clincial tests, but they (SSI) will not accept his testimony at my hearing. Instead they had a orthopaedic retired doctor at my hearing. I have neuro condition not a bone problem... what is wrong with these people? Oh I thank the good Lord for putting Dr. Smith into my life. I had been to so many doctors before who made feel I was crazy - but I'm not crazy; the pain and swelling, the burning sensation and the muscle spams are REAL. Thank goodness I

have the Lord in my life he gives me strength and is the only reason that I am still here because I have Faith and believe that there is Hope and a Miracle coming my way. This disease not only has affected my body but also has put such a strain on my finances and my marriage. I pray everyday to the Lord to give me strength to get through another day.
If there is any one who can give me the answers and pray for me I would really appreciate it.Thank-you.

Sherry & Ron

My name is Ron, my wife Sherry has RSD in her right foot. It all started back in 1998 when she had an operation on her heel. The Dr made mistakes and she never really recovered from the operation. She was later dignosed with CRPS and has had several operations since then to try to correct it. She had an implant called a stimulator inserted in her upper leg. this has not helped the pain and seems to have made it worse. She takes Neurontin around four or five times a day. Her foot is locked in an tilted position and she can not move it at all. Her toes are beginning to curl upwards. I know she is going through hell having to go through her life this way. Her Dr. gave up on her treatment because he does not accept our insurance any more. we have nnot been able to find another Dr who will take her in because they don't accept the Military insurance or medicare.
We fought with Social Security for two years and after refusal after refusal we finally convinced them that she was disabled. She is drawing Social Security now but still can't find a Dr. who is qualified to treat her. They don't know what RSD and most of them think she is faking the disease. I'd like to find someone who will understand what she has and will give her encouragement. I do all I can but really feel helpless. I feel her pain and I hurt as much for her as she does with the disease.
Any hope at all for her!!

Brandon

I have been suffering from rsd since 1996 after a digital nerve repair in my left middle finger. In Nov. 2002 I had a surgery to cut the steloid ganglian in my back. The severe hyperhydrosis subsided but the pain is still intense in my finger and I have still experienced nuerogolical disturbances. I have visited 14 doctors in the past years and have found temporary relief from sympathetic nerve blocks and acupuncture. However, the most relief I ever had was after a nerve block in my affected finger. My father claims it was the most normal hour of my life after the block since my injury. My extreme anxiety subsided and my sympathetic nervous system was calmed. This was in Aug. 2002. I have decided that I can not continue in this state and have decided to have the painful nueroma that is causing all of this removed and done with a "vein wrap" procedure. Apparently this procedure has a high success rate. My fear is that I will excerbate the rsd symptoms but have no other alternatives. I have just this week had to come to the realization that I am "disabled." This is what a pain management doctor told me this week. He was not helpful and couldn't even get me an appointment until over a month from now. So I have elected to have the surgery. Any advice would be greatly appreciated. -Brandon