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Story Board
personal stories and notes from our correspondents |
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NatallieI've been diagnosed with RSD. The majority of the information I have
found out from internet sites. It is because I slipped on a wet floor
at work through my employers' negligence that I ended up with this freaky
thing that goes on constantly in my body. Jackie SnyderHello My name is Jackie Snyder. Gee I don't know whe re to start. I came across your web site looking for some type of help. I also have RSD 1998 from an injury at work or from the shoulder surgeries. I'm not sure. I am not able to work because of the severe pain and the medications. I have been fighting a Workman's Comp. Insurance Co. and Social Security Disability but they think I am exaggerating my pain. I have been seeing a neurologist Dr. Smith who can prove it thru clincial tests, but they (SSI) will not accept his testimony at my hearing. Instead they had a orthopaedic retired doctor at my hearing. I have neuro condition not a bone problem... what is wrong with these people? Oh I thank the good Lord for putting Dr. Smith into my life. I had been to so many doctors before who made feel I was crazy - but I'm not crazy; the pain and swelling, the burning sensation and the muscle spams are REAL. Thank goodness I have the Lord in my life he gives me strength and is the only reason
that I am still here because I have Faith and believe that there is
Hope and a Miracle coming my way. This disease not only has affected
my body but also has put such a strain on my finances and my marriage.
I pray everyday to the Lord to give me strength to get through another
day. Sherry & Ron My name is Ron, my wife Sherry has RSD in her right foot. It all
started back in 1998 when she had an operation on her heel. The Dr
made mistakes and she never really recovered from the operation. She
was later dignosed with CRPS and has had several operations since
then to try to correct it. She had an implant called a stimulator
inserted in her upper leg. this has not helped the pain and seems
to have made it worse. She takes Neurontin around four or five times
a day. Her foot is locked in an tilted position and she can not move
it at all. Her toes are beginning to curl upwards. I know she is going
through hell having to go through her life this way. Her Dr. gave
up on her treatment because he does not accept our insurance any more.
we have nnot been able to find another Dr who will take her in because
they don't accept the Military insurance or medicare. BrandonI have been suffering from rsd since 1996 after a digital nerve repair in my left middle finger. In Nov. 2002 I had a surgery to cut the steloid ganglian in my back. The severe hyperhydrosis subsided but the pain is still intense in my finger and I have still experienced nuerogolical disturbances. I have visited 14 doctors in the past years and have found temporary relief from sympathetic nerve blocks and acupuncture. However, the most relief I ever had was after a nerve block in my affected finger. My father claims it was the most normal hour of my life after the block since my injury. My extreme anxiety subsided and my sympathetic nervous system was calmed. This was in Aug. 2002. I have decided that I can not continue in this state and have decided to have the painful nueroma that is causing all of this removed and done with a "vein wrap" procedure. Apparently this procedure has a high success rate. My fear is that I will excerbate the rsd symptoms but have no other alternatives. I have just this week had to come to the realization that I am "disabled." This is what a pain management doctor told me this week. He was not helpful and couldn't even get me an appointment until over a month from now. So I have elected to have the surgery. Any advice would be greatly appreciated. -Brandon |
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