Pam
A careless driver ruined my life
I feel the pain everyone else feels. I too have RSD and I'm not dealing
with it well. I was at a red light when all of a sudden I got smacked
in the back end of my vehicle. I came down on the steering wheel with
my hands breaking the steering adjustment. I've had two surgeries and
now, because of the surgeries, I have RSD... My life right now totally
sucks; I don't want to wake up because I know I'm gonna have a bad day.
I kind of sucks, don't it?
So for all you people that like to speed, tailgate, drink-and-drive,
talk on a cell phone, smoke while you are driving, brush your hair,
put lipstick on in the mirror while driving a car... think of the ones
you hit - because we will never be the same.
I wish I could believe that drivers will take
notice of Pam's message, but I don't. Despite the injustice, for victims
there is no choice but to make the best of the life that's left. I hope
Pam will re-build her life with help from friends and other RSD patients.
There is hope - even for RSD sufferers. (Editor)
Bobbiejo Roseboro
Okay. I have come to your website several times, and thought of writing
about my story. I have just been too shy, until tonight.
My name is Bobbie jo Roseboro. Up until January 9th 2003, I was an
RN on a very busy medical floor. I was the nurse that others would call
when they couldn't get an IV started. I was good at my job, and I loved
it. On January 9th I was in a patient's room, conversing with her (actually
I was providing empathy). I saw that her IV was unclamped, so I reached
over to clamp it. All of a sudden I felt pain and I knew that I had
broken my ankle. My patient (who was blind), said "I heard a snap".
The pain was bad, and my ankle had swollen up to the size of a grapefruit.
I was taken down to the ed, where I was diagnosed with a "sprain".
They put on an aircast, and sent me home. I drove an hour home, crying
all the way. Needless to say, I went for a second opinion the next day,
and was told that it was broken. The swelling was so bad that he had
to put on a temporary cast (you know the kind with the plaster and ace
wrap) for the weekend. In three weeks, the doctor took the cast off
(I was so eager to go back to work). For three days I was in extreme
pain. I went back to the doctor, who said "maybe the break hasn't
healed enough". He casted my right foot again, for another three
weeks. Again, in three weeks, he took the cast off.
This is where my story of RSD begins. After the doctor took my cast
off, I knew that my foot wasn't "RIGHT". I couldn't bear weight.
And the color of my leg was unreal. It was so purple! So I began physical
therapy; but it was soooo painful I had to quit. My doctor was dumbfounded.
He ordered an MRI. It showed "Tendon Synovitis". He mentioned
RSD, but didn't explain it to me. Although I was a nurse, I hadn't heard
of this. I searched for a second opinion. My next doctor looked my MRI,
and offerred to send me to a pain doctor. I asked him about RSD , and
got the worst explanation ever. Let me tell you what my leg felt like
then. I felt like there was a bolt going through my ankle to the other
side of my foot. It was still swollen. My foot would change temperatures,
and colors. So I went to the pain doctor.
He diagnosed me with early RSD. In the early days of my injury, I
was on percocet5/500. It was then increased to 7.5/500. I want to tell
you what I have gradually increased to. I went from the percocet to
oxycontin (all different strenghts), to a duragesic patch, to ms contin.
The ms contin seems to be helping, I also have 15 mg msir for breakthrough
pain. Here is a list of meds I am on now:
| mscontin 30mg bid |
msir 15mg prn breakthrough
pain
|
| clonodine .2md bid |
elavil 75mg qhs
|
| clonopin 1mg q6hrs |
neurontin 300mg two times a
day, then 600mg at night
|
| lexapro 10mg qhs |
prevacid 30mg qhs
|
| docusate sodium and sennekot for
the "narcotic constipation". |
I was diagnosed with a stress fracture on the top of my "Frankenstein"
foot as I call it. Now I have another cast on. My life is so miserable.
I am married to a pretty good guy. He was always the stay at home dad
until this happened. Now he is out a lot looking for a job. We need
the benefits so bad. I have four absolutely beautiful children. BUT
I am still so unhappy. They don't know what it is like to have pain
all the time. I wake up at night with sharp pains shooting down my leg.
Up until my injury I was very active. We live at the beach. Almost every
day last summer we went to the beach. Now my trips consist of going
to Wal-mart, or the grocery store.
The reason I chose to write today is because I had a car accident
today. It was my fault. I was driving with my cast on, and the effects
of the clonopin from last night were still in my system. I hit someone
in the rear end. Can I not do anything anymore? I am so depressed I
could just die.
I don't want to see my leg after the cast comes off. I am afraid I
injured it in the wreck (the side of my foot hurts), but I am not going
to tell anyone. I am so sick of my leg. I am sick of the purple color
it has become. Before my cast, I noticed that the skin on my right foot
has become shiny. Lord knows I am not trying to be a big crybaby, but
after today, I just don't know.
I am changing the subject again, but has anyone heard of stress fractures
related to RSD? The doctor told me thaat RSD pulls calcium out of the
bones. I have never heard of it.
I am going to go now. It is one o'clock in the morning. I hope to
hear from someone soon. Please tell me that I am not a basket case and
that one day I will be near normal again!
1. You are not a basket case
2. RSD doesn't take calcium from the bones, but inactivity does. Even
though it hurts, it is essential to get RSD limbs working again to prevent
atrophy and consequent lost of bone density. (Editor)
Sabrina Sanders
I had surgery for a nueroma on my left foot almost a year ago, but
was diagnosed with RSD before we could do surgery we had to control
the RSD symptoms. Almost a year later I am still having trouble with
flare ups of pain in that foot and leg. With each flare up it seems
that the pain seems to go further up the limb and now it is even in
my lower back some. I have had the sympathetic blocks done and going
in to have some done in the next week or two. Just wondering if anyone
else seems to have the severe pain come on so strong in the first year
or two that I seem to be experiencing?
Thanks so much
-------------------------
I sent a short letter in October about the Insurance company not filling
my Topamax prescription again and I was relapsing into more pain in
my feet and legs. I was scheduled to go in for Lumbar Blocks, had two
of them done. I called the insurance co. myself and spoke with them
and asked what the deal was. Here I was having more nerve blocks done
do to the fact that they wouldn't simply fill a prescription, that would
cost a lot less than the nerve blocks, and the meds that the doctor
tried to put me on for the RSD was not working for me at all. They finally
agreed to fill the Topamax again. It is now January 2004, I was able
to enjoy my holiday this year unlike last year when I was in severe
pain and still on crutches. The Topamax has helped me a great deal.
My doctor and I are going to try and wean me off of it real soon and
see how I do. Cross your fingers. I'll keep in touch.