Vicky - Walsall, West Midlands
I had a works accident in June 2000. A trolley load of industrial metal
fasteners tipped over injuring my left leg. Some grazed the bone and
something went into the back of my ankle. The pain was horrendous but
I tried not to make a fuss as it didn't look any more than a burn mark
and swelling at the back of my ankle. I worked in the sales office and
carried on as long as possible but the following day I still couldn't
bear to touch it and put a cardboard box in my bed to hold the sheets
away from my leg. My GP told me to rest and, after five days, I decided
to go back to work. I had to go to town and seemed to be getting nowhere
fast. My foot felt very odd and the pain was unbearable the following
day. The whole of my leg was burning and tingling . Even the nerves
in my face were twitching. I have never felt so scared in my life. I
thought that my GP would instantly know what was wrong but he looked
at me as if I was mad even though my face looked as if I had seen a
horror film. Walking made the pain worse.
After four weeks I was sent for an x-ray. I couldn't believe it when
it came out negative. I felt like I was like walking on an open wound.
I was diagnosed with a sprain and sent for physiotherapy. I could hardly
walk at all and begged for sticks but they refused. I deteriorated and
was sent for an emergency appointment with the consultant but he made
me out to be a malingerer and discharged me. Only my TENS helped and
it is impossible to explain how bad the pain felt. I borrowed some sticks
and searched the yellow pages to find someone who could help. I found
a chiropractor who said he dealt with nerve problems. He said I had
compartment syndrome. I knew it was a nerve pain so I endured him treating
me for four weeks with long needles in my leg. They made the pain worse
but he was all I had. My GP then decided to send me for a second opinion
and I was diagnosed with RSD based on the wastage in my lower leg, the
colour changes and the pain. I wrote to the hospital where I was discharged
and after a couple of letters was sent an apology.
I had two guanethedine blocks but I had a bad reaction. I had to go
onto underarm crutches. Social services said I would have to have a
wheelchair as I was unsafe living on my own. I was wishing my life away
but I decided to pay my consultant privately for help. I was in hospital
for two weeks. My consultant said he wanted other members of his team
to examine me. I was bullied and intimidated. One doctor made out I
had brought on the RSD symptoms by not walking on my leg. He wrote in
his report that he thought I was hoping to benefit from a works claim
but he could not have been farther from the truth because I loved my
job and had a good social life. Now I feel isolated. I have been turned
down for disability twice and fear I may lose my home. I was told by
my company to claim but what use is a settlement in six years time?
I had only asked for prescription fees. Others said they had better
things to do. I was given a
nerve conduction test which showed I had peripheral neuropathy greater
on the left than on the right. My right leg had always seemed OK to
me apart from a bit of sensitivity when the pain is really bad.
My GP is the only one who sympathises. He has put me on tegretol 800mg/day
and prozac. When I apologised for being a pest he said '' Where else
could you go?
Sherry - Texas, USA
Hello! My name is Sherry and I have been diagnosed with RSD. On July
31, 2001 I was at a county fair. One of my friends who is a neighbor
of mine asked me for my help with a cow. I was very excited to lend
a helping hand just as friends are. I was helping to lead the 1300 lb.
market steer in the show ring so the could compete against all the other
cattle at the fair for Champion. As I was walking the cow with a halter,
he turned his face and my thumb was caught in the rope. A few hours
later, I went to an EMT to get some ice. He wasn't sounding too happy
when he was examining the hand. He sent me to the ER at the local hospital
a few minutes away. After doing a X-ray, the doctor let me know that
I dislocated my thumb and I won't be able to work the next day. It was
the first day of work I ever missed. When I returned to work the day
after, my work sent me home and told me I can't come back until I see
my medical doctor. When I went to my family medical doctor, he re-wrapped
my hand and said that I need to see an orthopaedic surgeon. He put me
off work for 10 days. Finally, while I was on my vacation I had an appointment
with the surgeon. The doctor never looked at my hand and just put a
cast on it. He kept adding on the cast all the way to my shoulder. "It
was amazing that you need a cast all the way to your shoulder because
a dislocated thumb." The doctor put me off work another two weeks.
The cast was causing so much pain that my fingers were turning blue.
They cut the cast off and splinted it. He then put me off work for a
month. I had two EMG's and several X-rays. After being off work for
three months and three weeks he finally decided to send me to a hand
Specialist. The specialist diagnosed me with RSD and told me I was in
the middle of the second stage. He sent me back for physical therapy
and set up appointments for nerve blocks. Last week I had a series of
five stellate ganglions done. On my fourth appointment for the treatment
they decided that the blocks were not working. He canceled the two last
appointments. Next week he is going to try an intravenous nerve block
series of five again to see what that will do.
I hope I find an answer soon. My hand has been burning and numb for
the past five months. I hope something can be done to relieve the pain.