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personal stories and notes from our correspondents

Margo - Oregon, USA

Hello, my name is Margo and I live in Oregon. I just moved here from California. I have been through 5 doctors in the last year, since coming here, and am seeing a new one on Friday. 2 doctors ago I had one who said I was a "drug seeker" and only gave me Tylenol #3 before dropping me. The last doctor tried to get me to go into a drug treatment center! He gave me m.s.contin 15 mg. Xq12h. They didn't help for very long and so my husband called him and asked for something for breakthrough and what I got was the statement that he would like to refer me to the rehab.
Help! I am completely bed-ridden and have to use a wheelchair otherwise, as my legs quit working for me several months ago. I want so bad just to die! If anyone out there can offer me some help, I'd appreciate it greatly! Please help, I'm suffering…
May God Bless and keep You and yours, Always!

Pam - USA

My name is Pam I am 41 years old and I have had RSD since 1997. It started after I had a ganglion cyst removed from my right wrist. I have been to specialist, doctors, physical therapy, in and out of pain clinics. I have been through 3 blocks and numerous injections - many didn't last - and I have tried 100 different pills. I have had all kinds of tests, and it has spread to my arms, shoulders, neck and now my back and legs. There are days I cannot walk. I can't use my hands because of the burning and swelling, and the pain is constant . I also have migraine headaches, osteo arthritis, blurred vision, and bulge disc c5 c6. Right now I am on promethazine, neurontin, darvocet, amitriptylene, zanaflex and ultram. I also have problems with my stomach. I have degenerative disc disease, which is and awful pain to deal with daily and I have to have to have help with washing myself as I can't stand anything touching my body. I cannot work because I get dizzy spells and with all my medical problems along with my RSD it is impossible. I would like to know why you can't get any help when you are not able to work. I guess my advice is pray and be willing to try to fight this.

Charles - Concord, California

I am a 39 year old male and have had eight back surgeries... Everything from a simple lami-to pedical screws and rods L5-S1. Each time I have been on 360 ms-contin for a couple of years and can take even more than that without side effects (respiration etc.). I don't want to take the morphine any more, however. I was stared at by my doctor as if I was dying of this; but I refuse to die. I was a world champion water skier and then did well at snow skiing. A couple of years ago I purchased a sail boat - but now I can't to sail anymore. But I refuse to give up living. This is not a personal ad… I have been through all this and I run a pain support group (though I can't go to them now since our clinic charges them).
It seems that the doctors are stumped with this issue.