
www.rsdalert.co.uk
Warning and encouraging

If you have a story
to tell, send it in for publication...

For correspondence help or general information click...

Click
for more Stories
|
|
Story Board
personal stories and notes from our correspondents
|
|
Margo - Oregon, USA
Hello, my name is Margo and I live in Oregon. I just moved here from
California. I have been through 5 doctors in the last year, since coming
here, and am seeing a new one on Friday. 2 doctors ago I had one who
said I was a "drug seeker" and only gave me Tylenol #3 before
dropping me. The last doctor tried to get me to go into a drug treatment
center! He gave me m.s.contin 15 mg. Xq12h. They didn't help for very
long and so my husband called him and asked for something for breakthrough
and what I got was the statement that he would like to refer me to the
rehab.
Help! I am completely bed-ridden and have to use a wheelchair otherwise,
as my legs quit working for me several months ago. I want so bad just
to die! If anyone out there can offer me some help, I'd appreciate it
greatly! Please help, I'm suffering
May God Bless and keep You and yours, Always!
Pam - USA
My name is Pam I am 41 years old and I have had RSD since 1997. It
started after I had a ganglion cyst removed from my right wrist. I have
been to specialist, doctors, physical therapy, in and out of pain clinics.
I have been through 3 blocks and numerous injections - many didn't last
- and I have tried 100 different pills. I have had all kinds of tests,
and it has spread to my arms, shoulders, neck and now my back and legs.
There are days I cannot walk. I can't use my hands because of the burning
and swelling, and the pain is constant . I also have migraine headaches,
osteo arthritis, blurred vision, and bulge disc c5 c6. Right now I am
on promethazine, neurontin, darvocet, amitriptylene, zanaflex and ultram.
I also have problems with my stomach. I have degenerative disc disease,
which is and awful pain to deal with daily and I have to have to have
help with washing myself as I can't stand anything touching my body.
I cannot work because I get dizzy spells and with all my medical problems
along with my RSD it is impossible. I would like to know why you can't
get any help when you are not able to work. I guess my advice is pray
and be willing to try to fight this.
Charles - Concord, California
I am a 39 year old male and have had eight back surgeries... Everything
from a simple lami-to pedical screws and rods L5-S1. Each time I have
been on 360 ms-contin for a couple of years and can take even more than
that without side effects (respiration etc.). I don't want to take the
morphine any more, however. I was stared at by my doctor as if I was
dying of this; but I refuse to die. I was a world champion water skier
and then did well at snow skiing. A couple of years ago I purchased
a sail boat - but now I can't to sail anymore. But I refuse to give
up living. This is not a personal ad
I have been through all this
and I run a pain support group (though I can't go to them now since
our clinic charges them).
It seems that the doctors are stumped with this issue.
|