Sheryl - Maine, USA
I was diagnosed with RSD in February 2001 following surgery on my left
knee, which involved cutting the bone and placing a bolt. I was my surgeon's
last patient, because he had affairs with his female patients, so his
career changed - though he had to see me as a patient for 6 months after
surgery. With his new career, I was no longer much to him, and he made
me feel like I was just an interference. He didn't explain anything,
but just kept sending me back to the hospital for tests. When I asked
what the test was for, he would snap at me. I got fed up with him after
he said he thought I had RSD, he didn't explain it to me and naturally
I thought he was trying to tell me it was all in my head because antidepressants
was his biggest issue. I suffered with no doctor for several months
until I was finally able to see a new surgeon who confirmed the RSD
diagnosis and explained it to me. I have it in my whole left leg from
the foot foot clear up to my hip. I have insomnia, and I'm so irritable
that my 12 year-old daughter wonders why the tone of my voice is no
longer pleasant.
I always ask why me? What did I do wrong to deserve this?. I was raised
in a good family which gave me lot's of love and still does. At the
age of 16 my virginity was stolen from me by a rapist and I have been
raped 3 times since then. I spent 7 years getting beaten by my youngest
daughters father. I lost my best friend to suicide, then I lost another
best friend to murder. My life has been so full of hurdles to jump and
I can't jump any more.
Finally, God gave me everything I needed - a man to love me, the willpower
to learn to trust men again, two beautiful daughters and a happy family
life. For three months life was great, then I had that stupid operation
that totally screwed up my life. I don't know how or why my fiancée
puts up with me; I don't know how my children can live with me - it's
not fair to them to have to suffer with me. I just want to crawl in
a hole and die. I pray every night that I will not awake in the morning...
Now, to top it all off, Social Security denied my appeal, so I need
to get a lawyer and fight the case. I don't have the energy to fight
any more.
I am right with the RSD Awareness campaign. I want the world to hear
about this as no one really knows about until they get struck with it.
We all know what cancer is; as for MS, we know that too; there are so
many diseases we all know about, but RSD is hidden in a corner. I mean
I'm no longer the Sheryl I once knew - She was left on the operating
table and I don't even look like her any more because I can't exercise,
so I'm gaining weight.
Thank you for giving me more reason to keep fighting.
Sheryl